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Trisomy Awareness Month: practical support for families in West Sussex


At The Ashton Care Group, we support individuals and families across Bognor Regis, Littlehampton, Selsey, Chichester and surrounding West Sussex communities with personalised care at home and supported living.



What does “trisomy” mean?


Trisomy is a genetic condition where a person has an extra copy of a chromosome. The most widely known is Down syndrome (Trisomy 21). Other trisomy conditions include Edwards syndrome (Trisomy 18) and Patau syndrome (Trisomy 13).


Every person is different. Some people will need only light-touch support while others may need more structured, specialist care.



What families often need support with


Families we speak to are usually juggling a mix of practical care, health appointments and long-term planning. Common areas where support can make a real difference include:


·      Daily living routines: personal care, dressing, meal support and keeping a consistent structure

·      Medication support: prompts, administration and monitoring side effects

·      Mobility and safety: moving and handling support, falls prevention and safe home set-ups

·      Communication and confidence: patient, familiar carers who understand how your loved one communicates

·      Meaningful activity and community connection: reducing isolation and building a sense of purpose

·      Family respite: planned breaks that protect carer wellbeing without guilt



How personalised care helps people live well


Good care is not about doing everything for someone. It is about helping them do as much as possible for themselves, safely.


Depending on needs, we can support with:


·      Home care in West Sussex: flexible visits that fit around your routine, from companionship to personal care

·      Supported living: structured support that builds independence and life skills

·      Complex needs support: experienced teams who can work calmly and consistently with higher support requirements


We focus on consistency, clear communication and care plans that reflect the person, not just the diagnosis.



Planning ahead: a simple checklist for families


If you are exploring care options, these questions can help you make a confident decision:


1.        What does a good day look like for my loved one and what support makes that possible?

2.        What are the non-negotiables (routine, food preferences, communication style, sensory needs)?

3.        What risks need managing (mobility, swallowing, medication, anxiety, behaviour, isolation)?

4.        Who needs support too (parents, siblings, wider family carers)?

5.        What would help in the next 4 weeks, not just “someday”?



Local support in Bognor Regis, Littlehampton, Selsey and Chichester


If you are searching for care at home in Bognor Regis or nearby, or you want to discuss supported living in West Sussex, we can talk through what you need and what is realistic.


We offer:

·      Fast response and clear next steps

·      Assessments within 24 hours where appropriate

·      A care approach built around dignity, familiarity and practical outcomes



Speak to our team


If you would like to talk through care options for yourself or a family member, contact The Ashton Care Group. We will listen first, then recommend a plan that fits.


Call 01243 838223 or email mail@ashtoncare.co.uk.

 
 
 

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